Acıbadem Üniversitesi Sağlık Bilimleri Dergisi 2020 , Vol 11, Issue 3
The Level of Anxiety-Depression and Caregiving Burden In Mothers of Children With Chronic Diseases
Muradiye Aldem Budak1,Emine Geçkil1
1Necmettin Erbakan Üniversitesi Hemşirelik Fakültesi, Çocuk Sağlığı ve Hastalıkları Hemşireliği Anabilim Dalı, Konya, Türkiye DOI : 10.31067/0.2020.289 Aim: The aim of this study was to investigate the factors affecting the caregiving burden and anxiety-depression risk levels in mothers of children with chronic diseases.

Methods: The population of the descriptive study consists of mothers whose children are inpatients in the pediatric unit of a university hospital in Konya for chronic diseases. The sample size for this study was calculated as 164 (N=(1.962*13.092)/22). The data were collected by having the voluntary mothers staying in the hospital between November 2016-January 2017 and filling the questionnaire that included sociodemographics, the Hospital Anxiety and Depression Scale (HADS) and Caregiving Burden Scale. Data were analyzed with frequency, percentage, mean, t-test in independent groups, variance analysis and Tukey HSD test.

Results: The mean age of the mothers was 32.54±7.95 and the mean age of the children was 5.70±5.46. The HADS scores were 57.9% of the mothers with anxiety risk and 75.6% with depression. The caregiving burden scores of the mothers were found to be 26.59±12.6 and it associated with live-in villages/towns, unemployed, low income, no support for caregiving, long duration of the disease and frequency of hospitalization (p<0.05). The anxiety scores of the mothers who live-in villages/towns and who have low monthly income are significantly high. The depression scores of the mothers who live in villages/towns, who have low monthly income, who have 3 or more children, who are trained about the disease of the child, whose children are older with long term diagnosis, who have frequent repetitive inpatient treatment were found to be significantly high (p<0.05).

Conclusion: The burden/responsibility/load of caregiving burden and anxiety-depression risk levels of mothers with chronically ill children increased. Nurses should pay attention to these findings in line with the family-based care in approaching mothers with children with chronic diseases. Keywords : Mother, anxiety-depression, caregiving burden, pediatric nursing, chronic disease